Young Onset Dementia (YOD) is the onset of dementia before the age of 65 years and it’s becoming increasingly recognised as a very important clinical and social problem in the UK and around the world. Young onset dementia can come with devastating consequences for the patients and those who care for them.
Being able to find age appropriate information and services for young people who feel they may be experiencing signs of early onset of dementia is currently limited and this has been explored through experience of working within this life changing area of dementia care.
The use of video and text content in this easy to use app provides engaging and informative material that can be viewed wherever, whenever.
The mobile app can be used by patients themselves or by carers and professional at the time of diagnosis so that in their own time, patients and family members can use expert guidance to help them to deal with all aspects of their diagnosis.
And more importantly guide them to an array of services and organisations that can provide specialist support and information both locally and nationally.
Plus educating the patient allows them to make informed choices and have good quality conversations with the healthcare professionals involved in their care.
Within the service directory sections have been categorised, e.g. finances, transport, living well, employment, relationships, etc. Along with contact details for these resources and links to websites. Our app is a one stop guide for anyone confused or concerned about YOD.
Our YOD App is available to download, free via both the Apple App and Google Play stores.
The YOD App was developed as a joint venture between NHS Leicestershire Health Informatics Service and Leicestershire Partnership NHS Trust. Combining skills from both organisations (clinical knowledge + technical knowledge) to create something really exciting. The use of apps is not only more engaging as information is presented on a multimedia platform, but the use of text, audio and video is also much more accessible.
Consultant psychiatrist Latha Velayudhan said:
“We found there was a gap in information for those who had just been diagnosed. There is a lot for older people, but limited support for younger people.
“We think this app fills the gap.
“We had a few focus groups with patients and carers. The feedback was excellent. One of them said it would have saved them six months of searching for various numbers and organisations. The app takes you where you need to go.”
Gemma Clayton – Business and Marketing Manager LHIS said:
“One of the advantages of the app is that you can take it away and look at it in your own time, or with your family and carers. It is also being updated constantly so you have the very latest information on services, legal issues, finance and benefits, transport and many other topics.”
We were delighted to receive a Highly Commended in the national CCA Good Practice Awards for the category “Innovation to Support Service Development”.
YOD was also highly commended in the “Excellent Ideas/Innovation Award” category of the LPT Celebrating Excellence awards.
Our team attended the Royal College of Psychiatrists, Faculty of Old Age Psychiatry, Annual Conference on 11th March 2016, which held as the East Midlands Conference Centre Nottingham. The app was received with great interest by delegates and downloads hit a record peak with clinicians who had visited our stand getting straight on their phones to get hold of the app!
Mobile Application Development
Here at LHIS we pride ourselves on our ability to use the latest technology available to help our customers make improvements, and efficiencies in their organisation, or to their customers!
This is a prime example of that ethos. Mobile application technology may seem out of reach to many organisations, however this is not the case. As you can see from the apps we have now made available on the Apple and Google Play Store, mobile app technology can be used for many things from simplifying and improving business as usual activities, such as patient communication and education, to enabling tools such as wireless availability.
This is a definite growth area for the industry, people are accessing information when and where they want to, and mobile apps allows you to target this audience directly, in the comfort of their own home, on the bus, or as an additional tool to be used in consultation with a customer/patient.
Do you have an idea for an app? Contact a member of our team today and we will use our expertise and experience to turn your idea into reality!
PRISM Product - The facility to be able to find a wide range of resources and guidelines, all located within one single IT system which can be accessed immediately is long overdue- and most welcome!
Dr Tom Rowley,
PRISM Product - Having access to PRISM has streamlined my referrals in the 2 week wait pathway. I know I’m sending the patient to the right service with the right information. As we put more resources onto PRISM, I am confident that this will make the life of the busy GP easier, and patient care will benefit as a result. The patient will be seen in the right clinic by the right clinician first time and everyone will benefit.
Dr Tony Bentley,
From the initial concept that was discussed with Sarah and her team (Kerry, Mo and Rachelle), the process to have an app that can be used across all services to capture NHS FFT feedback has been an easy one.The team listened to the requirements, took time to understand the national and local requirements needed to ensure the feedback was captured appropriately. We had early design meetings to ensure we were happy with the app display and function. For the roll out of the app to services we had very comprehensive support and understanding from the team, great communication on updates, technical issues, user errors and general queries. As a service we have made changes to the questionnaires throughout the process and these changes have been quickly and efficiently managed.Teams ‘on the ground’ have also benefited from the fantastic support from the team, when they have had queries with the app and the devices. The database behind the app has also improved the efficiency of collating the feedback. Working with Sarah, Kerry, Mo and Rachelle from HIS has been a great piece of partnership working, and a I have learnt from them and the experience.
CHS Patient Experience and Learning Manager, CHS Governance team
The ECT team with LPT in conjunction with NHS Leicestershire Health Informatics Service (LHIS) developed a state of the art and first of it's kind app on Electroconvulsive Therapy (ECT), a specialised treatment in mental health for patients with severe depression. This is an app for all patients, carers and professionals. The clinical content was produced by ECT experts and the design, recording, editing videos and marketing was done by LHIS, The project was carried out n 2014-15 and the app was launched at the Royal College of Psychiatrists ECT Conference in November 2015 in London.I am very impressed by the support and quality of work delivered by LHIS. They were very friendly and approachable in addition to their high standards of professionalism throughout the project. The team is very motivated, dynamic and enthusiastic and went beyond their limits in completing the tasks and sticking to the project deadline. they were quick in amending/ updating the content based on expert suggestions and involved clinicians in designing and developing the app. They helped in project management ie: writing the proposal, strategic planning, approval process and exploring publicity and awards. More importantly LHIS were heavily involved in marketing the app to various healthcare organisations, presentation in various academic conferences and producing the leaflets.My special thanks go to Sarah Ost who lead the project on behalf of LHIS, Kerry Cyster and Gemma Clayton. All of their input resulted in the app being nominated for the PEN (Patient Experience Network) National Awards in March 2016.I wish LHIS much success and would recommend them to anyone considering developing similar apps.
Dr Girish Kunigiri MBBS, MD (Psy), DNB (Psy), MBA (Quality Management),
Consultant Psychiatrist in General Adult, Clinical Director East Midlands Mental Health Clinical Networ
I have great pleasure in recommending NHS Leicestershire Health Informatics Service (LHIS) for anyone considering developing Apps.I have collaborated and worked with LHIS since 2014. Following a successful bid to East Midlands Strategic Clinical Network Innovation Funds, NHS England, our Young Onset Dementia (YOD) team within Mental Health Services for Older People, Leicestershire Partnership NHS Trust, developed an App for YOD patients and their carer, in collaboration with the LHIS, which is first of its kind as per our knowledge. This project was carried out during 2014-2016. It was showcased at the Annual Meeting for Old Age Psychiatry Faculty, Royal College of Psychiatrists, March 2016 and also at the Innovation Conference, Nottingham, April 2016.The YOD App has won couple of awards, (1) Highly Commended Award for the category Excellent Idea/ Innovation at the Celebrating Excellence event at LPT, April 2016 and (2) Highly Commended award at the National Care Coordination Association for category “Innovation to Support Service Development”, Oct 2016.I am continuing to collaborate with the LHIS team to develop another dementia App.I greatly appreciate the support; quality and professionalism of the entire team at LHIS who helped with YOD app. They were very friendly and approachable. The team is very motivated and enthusiastic and would go beyond their limits in completing the tasks. Although it was new venture for us as clinicians and them to be working in such an area, they were quick in understanding our clinical needs, they attended patient and care focus groups for improvising the App, amended and updated the content based on expert suggestions and were great team players to work together in designing and developing the app. More importantly LHIS supported immensely in marketing the App, presentations in various academic conferences, and producing the leaflets/pamphlets. My special thanks to Sarah Ost, Service Delivery Manager, who lead the project on behalf of LHIS; Kerry Cyster, Product & Customer Support Officer, for designing and for vigorous quality check; and Gemma Clayton, Business and Marketing Manager, for compiling/editing videos and further enhancement of the overall design making it user friendly.I wish all the success to LHIS team
Dr Latha Velayudhan MBBS, DPM (Psy), DNB (Psy), MD (Res),
Consultant Psychiatrist in Old Age Psychiatry Senior Clinical Lecturer (Hon), Institute of psychiatry, psychology and Neuroscience, Kings College London Reader (Hon), University of Leicester
This is coming with appreciation re the ECT app you and colleagues developed. It is comprehensive and the availability of written , visual and audio information is very useful. I also think the information for professionals if read by a patients is not daunting , which allows for ECT to be destigmatised and seen as a medical procedure which we take seriously.I am the only accredited ECT Psychiatrist for this district where I work in Australia and recently managed to wrangle more Consultant time for ECT which will allow me to streamline the service and train Registrars. For a service which did not have trained ECT nurses, we now have them and the nurses section will be useful there. I see this app as an useful resource and see my team using it.Wishing you the best and congratulations again to you and your team.
CMC Vellore Trained Psychiatrist
I would like to thank the Leicestershire Health Informatics Service worker for sorting out all my laptop problems. Colin came out to Whitwick last week (on the same day that I phoned!). He was so helpful and sorted out several problems. Even more importantly, as far as I’m concerned, he didn’t once make me feel like a complete incompetent!! He’s friendly, knowledgeable, patient and has a great sense of humour! I do hope that you can identify him through looking at the call out log for last week. He really does deserve to get a Customer Service Award.
Your IT accounts administrator, has provided prompt, efficient and effective support to us, not just over the last year but for as long as I have known him. He is unfailingly polite, cheerful and approachable – significant qualities for those of us who are less than ‘experts’ and very much appreciated. It goes without saying that his advice and expertise is accurate and reliable and this, added to his admirable attitude, makes him a staff member Leicestershire Health Informatics Service should be proud of.